She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Menu. You can have a painful life. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. She inspired countless people, invited -- no, demanded -- honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit.On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. "It's a GO!!!" In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. She had a younger sister named, Ellie. She was 21 years old. I'm grateful for the chance to keep being a person," she said. Claire Wineland was born on April 10, 1997, in Austin, Texas. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. Youll be missed deeply. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Claire and her mother beamed in a photo posted on social media after they learned her transplant was a go. By mid-August, she was back on and feeling ready. So grateful for everything this month. I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. Claire, who understood the importance of organ donation, was a donor herself. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. But Claire took on the evaluation process to get on the list with laser focus. She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. A double-lung transplant, when successful, can add years to a patients life. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. View All 253 Entries. Its not about how you feel second to second, she said. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. Revealed on her left ankle was a tattoo: the thumbs-up Dont Panic logo from The Hitchhikers Guide to the Galaxy.. She had a popular YouTube channel, gave . The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. Regarding her nationality, Wineland was an American and ethnicity wise she was white. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The years of telling myself I can do it on my own are over.. Yeager posted a video of herself doing a happy dance with friends in the waiting room. We would like to show you a description here but the site won't allow us. Jace Prescott died at age 31, too young. Sign up for our email list to stay in the know. Thus, at the age of 13, Wineland founded her non-profit organization, Claires Place Foundation. The organization aimed at providing financial and emotional assistance to patients of cystic fibrosis, and their families. Dedicated daily to memorializing notable personalities. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Cystic fibrosis did not define Claire Wineland. Wineland was invited as a speaker at many international conferences. "Go enjoy it, 'cause there are people fighting like hell for it.". Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. She had a popular YouTube channel, gave Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. She knew that the call could come at any minute, and on August 26, it did. Her organs were made available for transplant. Im not an innocent and Im not a child. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. We invite you to share condolences for Claire Wineland in our Guest Book. "She listened to the risks and the long list of side effects and emerged unfazed. She was a born artist and made her appearance in The Music Man, at around 4 years of age. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. There is no passionate rant to be had here I am just happy and thought I would let you all know. "I had to be honest," she once explained. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. The gift of life: Recipient of an organ donation herself, her organs were donated after her death. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Really. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Life isnt just about being happy. She revealed that The Clairity Project was not under her control. "Go enjoy your life. Claires Place Foundation is planning to continue extending support to patients. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Direct quote published by online women's magazine Glamour three days after her 2018 passing. Claire Wineland spent a quarter of her life in the hospital. I dont want to actually die. Im grateful for the chance to keep being a person. Wineland was moved by the communitys support when she was in coma. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. She listened to the risks and the long list of side effects and emerged unfazed. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. Im not an innocent and Im not a child. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. She wasnt done contributing. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. I have step parents that are fabulous. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Did you encounter any technical issues? Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. Its not for me and never has been.. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! I mean that seriously," she said with her signature smile and laugh, her eyes not yet dry. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. She never emerged from her medically induced coma. By asking for it, she said, she could relax and get in the headspace for whatever would come next. Wineland enjoyed performing on stage from a young age. The BBC is not responsible for the content of external sites. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. View this post on Instagram Im just really overwhelmingly grateful for all of this. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She never emerged from her medically induced coma. She expected to die young. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Sympathy . Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. pic.twitter.com/BsTEFmquR7. ", Claire Wineland, reflecting on her outlook on life. However, her illness forced her to leave the platform in 2017. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. The medical team that tended to her became family. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. She played hide-and-seek with nurses and left explosions of glitter in her wake. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. You are an inspiration and brought joy to many. Menu. Her foundation said she had died peacefully, surrounded by family. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. But last month, as . In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. The BBC is not responsible for the content of external sites. Im grateful for all the people who donated to help me get through transplant. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. In August 2017, after taking a break from YouTube videos for a year, Claire Wineland returned with a new channel. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. Read full obituary. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. She wasn't done contributing. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. She was of the mind that she would leave this world with the body she came in with. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. She needed financial help. Youll be missed deeply. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Support Families program offers assistance in treatment, and emotional support from volunteers. I didnt expect to have a chance. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Go enjoy your life. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. [11], On August 26, 2018, Wineland underwent a double lung transplant. Claire was an activist, author, TEDx Speaker, social media. She took great care to decorate her hospital room so it felt and looked like home. "If my biggest problem in life was to be healthy, I'd be incredibly bored. Get breaking news alerts& today's headlines inyour inbox. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Snap Greene is the alter-ego of 13 year old Claire Wineland. [4], Wineland was born with cystic fibrosis in Austin, Texas. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. She was 21. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. At the time of birth, she had the life expectancy of only 5 years old. She was also a speaker for the motivational TEDx Talks.. Everything I'm proud of comes from some of the darkest things in my life. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. She watched one of her doctors squirm as he gave her the safe-sex talk. Your effort and contribution in providing this feedback is much Submit an Obituary. I am 17 years old and a senior in high school. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Roy E Disney Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! However, her illness forced her to leave the platform in 2017. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. Wineland stated she did not have the energy or the money to take the case to court. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Updated They remained close friends, and shared the responsibilities of taking care of their daughter. The Times-Picayune Homepage. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. Cystic fibrosis is a genetic condition with no known cure. It was released on the first anniversary of Wineland's death. Why a terminally ill young woman has changed her mind about living. She did. Died: Sunday, September 2, 2018 (Who else died on September 2?). Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. I am also, like thousands of other people living on this planet, sick. James Watt Cause of Death, Age of Death, and Other Facts! It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. Find an Obituary . Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. There is no passionate rant to be had here I am just happy and thought I would let you all know. Check out the death cause, death date, and more facts about the. At the time of birth, she had the life expectancy of only 5 years old. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. 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